Category Archives: Monster

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One of the more fun parts of MS is

I am blessed with being quite clumsy at times. People have actually had their doctor write a letter to let people know that they aren’t drunk, they just have MS. It’s just one extra layer of the brain neurons not always firing quite right… do to my immune system attacking my own brain.

So with all of that said, I’m getting skilled at powering through and finding different ways of coping… especially with the giant bruise currently on my knee.

Here are just a sampling of the results of my grace due to either falling, bumping into things, reacting to meds, or who knows what

With all of those, and many more, I can choose to give in or get up.

Sunday Funday

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Sundays are a day of rest… mostly because I have to recharge from the previous week.

I’m doing a lot better now that I’ve been going to the gym and working hard at staying active and healthy, but a week’s worth of energy still can take it’s toll. The hubby is still amazed at my ability to literally sleep until 1pm or later on especially tough weeks. Thankfully I have a supportive family that allows that to happen.

I forgot…

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One big symptom of MS is brain fog. You know when you walk into a room and can’t remember why? That sums me up on a daily basis. That word that just on the tip of your tongue? It might as well be in China some days. If I told you I was going to do something and I haven’t, I don’t get offended when you ask again. I know I forget, it’s not a secret. Just like the fact that I was going to post daily this month and already forgot the second day. That sums up a huge part of my life, I forgot.

Speaking of other things I forgot – Here are just a few photos I meant to post on here

March & Dr Seuss

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March is MS awareness month and since I am all to aware of it, I thought I’d share some love this month.

This week I learned that because of the daily injections I used to do to attempt to stop my immune system from attacking my brain, I instead attacked the fat cells in my legs. The medicine killed the cells, creating a large dent in my right leg. Because I’m working hard at improving my health and body, it is becoming more and more evident. I guess I have a long way to go to get rid of more fat so it can have the chance of evening out.

In honor of Dr Seuss’ birthday today, I have a picture of my own Thing 2 from the school reading night tonight and a poem I found online…

The Fam

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I realized I haven’t updated things in awhile.

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Things have been busy but good.

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Dustin got the fun opportunity to travel for work… all the way to Iowa and Illinois. What it meant was that he got to work long days while we attempted to hold down the fort.

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It made me all the more grateful that we have each other and are a team.

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I have been doing well with my trial. I get to do a phone interview every couple of weeks to make sure I haven’t tipped over yet. Every couple of times for those, includes going in for blood work. I also throw in a quick physical and vaccines as well. I don’t get another round of actual meds until July.

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Other than the giant welt and itchy red spot from the last round of vaccines, things have been rolling in the right direction.

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Thing One is finishing up second grade. While he has excelled and learned so much, he still complains about going every morning. He takes longer to complain about the work, than to actually do his homework. He will just choose to read though, and will loudly proclaim that he loves science.

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He performed with the entire second grade to sing songs for parents. He was so nervous about messing up. It was sweet how big he smiled when he saw us sitting in the audience though. I may have a musical kid yet.

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He is still going strong with Cub Scouts. He just earned his wolf badge and will graduate to a bear in June. He looks so handsome in his outfit.

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Thing Two is finally stretching out and has grown multiple inches.

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He’s so excited that he’ll get to go to kindergarten in the fall. He’ll get to go to the same school as his big brother. For now, he’s loving preschool and looking forward to summer fun.

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This summer both boys will be at work with me. They’ll get to go on field trips together too. I’m excited to have them able to bond and be big kids together.

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We’ve been able to get to the cabin as a family for a few weekends now.

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It’s awesome to see the boys so independent and free.

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Basically, we have been very busy but happy together.

2016-05-29